Please put your prayers for a healed heart into over drive!
We just got back from her 6 month well visit and the pediatrician said that she could still hear a really loud murmur and that her liver seems lower that she remembered it being, which is a sign of heart failure. We will find out next Wednesday Sept 19 if she indeed does need surgery soon or if we can wait.... PLEASE PRAY THAT WE CAN WAIT!
She also put her on some reflux medication, so we hope that will help her eat more.
Wednesday, September 12, 2012
Tuesday, September 4, 2012
Update
27 Weeks, 1 Day
I am sorry I have not updated in so long. I see that many of you have been checking regularly and I REALLY appreciate that! We have been pretty busy here. We are currently seeing 5 therapists and it is exhausting. I think it is a combination of their level of optimism, how she is actually doing and my ability to understand what they are saying, but I feel like they are all saying different things at times.
Today with had PT with her two therapists. One said she is on track then other said she is not doing things that a typically developing child he age should be doing. One told me how to help teach her to roll over one way, cautioning me not do it another way and then the other one told me the opposite.
Many people have asked why I don't just stop seeing some of them, but I really couldn't decide who not to see. I think they are all bringing something different and something useful. I just need to use my knowledge of Adaline to decide who I am going to agree with.
Adaline was gaining and loosing weight to stay right around 10lb for over a month. We started her on solids and added some formula powder to them and she has been doing well. I even called the nutritionist today to ask if adding so much powder was OK and she said it was... so onward we go!
I am sorry I don't have more to write, but I am mentally exhausted right now and don't really want to write more.
I should add that Adaline continues to be a huge blessing in our lives. I love this little girl to pieces.
I am sorry I have not updated in so long. I see that many of you have been checking regularly and I REALLY appreciate that! We have been pretty busy here. We are currently seeing 5 therapists and it is exhausting. I think it is a combination of their level of optimism, how she is actually doing and my ability to understand what they are saying, but I feel like they are all saying different things at times.
Today with had PT with her two therapists. One said she is on track then other said she is not doing things that a typically developing child he age should be doing. One told me how to help teach her to roll over one way, cautioning me not do it another way and then the other one told me the opposite.
Many people have asked why I don't just stop seeing some of them, but I really couldn't decide who not to see. I think they are all bringing something different and something useful. I just need to use my knowledge of Adaline to decide who I am going to agree with.
Adaline was gaining and loosing weight to stay right around 10lb for over a month. We started her on solids and added some formula powder to them and she has been doing well. I even called the nutritionist today to ask if adding so much powder was OK and she said it was... so onward we go!
I am sorry I don't have more to write, but I am mentally exhausted right now and don't really want to write more.
I should add that Adaline continues to be a huge blessing in our lives. I love this little girl to pieces.
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| At the lake on Labor Day |
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